As planned for the First Grant Period of the IRENE COST Action, great progress has been made on the RES-Q (Registry of Stroke Care Quality) database to align it with the most state-of-the-art standards and regulations in order to allow for even wider and more secure use of this platform.
RES-Q has been evaluated for its alignment with current regulations, including GDPR and Czech cybersecurity standards. As the interpretation of regulations such as GDPR do evolve over time, RES-Q is currently undergoing a second compliance evaluation, and the results are expected to be released later this year.
Data Quality Standard has been developed, approved by key clinicians, and disseminated. Part of this deliverable is fulfilled by the data dictionary for the RES-Q v1.2 questionnaire, which is complete and available by request. The data dictionary for the RES-Q v2.0 questionnaire is also complete, and will be made available pending final review by the RES-Q PI. The RES-Q Comprehensive questionnaire’s data dictionary is still under development, and will be reviewed by the Czech Stroke Society along with the RES-Q PI.
A quality management system (QMS) was developed for RES-Q, but also governs all IT processes for the infrastructure on which the RES-Q platform is built. This QMS has been completed along with an audit of the documentation and processes by the host institution’s (FNUSA) quality management department.
We are confident that the efforts of the RES-Q team and especially its main figureheads Andreea Grecu and Steve Simsic will continue to positively impact our project. Thank you!